I think I have autism, what do I do? Expand Book an appointment with your GP Make a list of all the things that make you think you have ‘autism’ Attend the GP appointment and request a referral for an autism assessment Attend the assessment Await the decision
Are there other options other than going to the GP? Expand There are many professionals and organisations that can provide private assessments for you. People sometimes opt for these as waiting times can sometimes be lengthy. Costs do vary and can be considered costly. It’s also important to note that some local authorities may not accept the results of private diagnoses. They might insist upon an NHS diagnosis before they will provide services to you. For this reason, we suggest that you stay on the waiting list for an NHS assessment even if you also decide to go privately.
What can the GP do? Expand At the appointment the GP may ask you about: Your developmental history Services you are involved with Factors that are associated with an increased prevalence of autism Medical history Information about previous assessments Based on the information you give and the observations made the GP may refer you for an autism assessment.
What happens at the assessment? Expand The Assessment process may involve many different professionals for example Psychiatrist Occupational Therapist and Speech Therapist. People in your life may be involved such as previous teachers, counsellors or parents. The process could involve: Meetings to collect information regarding you Observations of you in a variety of settings Collecting reports about you from other people supporting you Medical examination Each stage of the process should be explained to you, and you should be given time to ask any questions. You can take someone with you. During the process diagnostic tools will be used, these are to help identify whether you have autism. One of the more common tools is The Diagnostic Instrument for Social and Communication Disorders (DISCO) you will be asked questions from your childhood about things that you did. If you can’t remember a family member can help you answer the questions.
What will happen after the assessment? Expand Generally you will not be given a decision on the day, this can come sometime after. The team will make a decision to whether or not they believe you have autism. You should be given a diagnostic report which outlines the formal diagnosis and ideally how your autism affects you. Sometimes, but not always a member of the team will contact you to advise you what to do next.
What happens if I don’t agree? Expand At the end of this process you may not agree with the decision, in which case you can request a second opinion. You can do this by: Going back to the GP – tell them that you are not happy with the findings and that you would like to be referred elsewhere for a second opinion. Seeking a private diagnosis.